Last week was Infertility Awareness Week

Last week was Infertility Awareness Week and the theme was Infertility Uncovered. I visited Resolve's website (the national infertility association) and read a bunch of articles, personal testimonies, and blogs but I didn't write a blog post of my own. I usually do but I didn't feel right doing so this year because I literally have nothing to contribute to the theme. Its tricky for me. As I dig deeper into "infertility", I realize more and more that, not having gone through it first-hand, I can't truly relate one hundred percent. Yes, it is true that I cannot conceive a baby on my own. But, I have not gone through the ups & downs of fertility treatment. I have not attempted to foster or adopt. I have not considered surrogacy or IVF. I want to empathize with my fellow sisters but I feel like a guest in the infertility club; sometimes welcome and sometimes not. I think for this year's theme, I am the unwelcome sort of guest. So I will stay silent on the #infertilityuncovered topic.

Even though I couldn't really participate in this year's Infertility Awareness Week, I want to leave some friendly reminders:
       * One in eight couples is infertile. Please don't ask about a woman's family planning; you never know how hurtful that simple question of When are you going to have kids can be.
       * We all are capable of making informed decisions about the size of our family. Please don't ask Why don't you have kids, yet or tell us You won't know what love is until you become a mother.
Just because I am not actively on an infertility path, I still believe in the importance of awareness. I will remain a cheerleader for advocacy and acceptance.  I send out my best wishes for those couples on their infertility journey. I grieve for women's miscarriages and couples with unsuccessful results. I am the one in eight.

Lastly, a little bit more about myself and my personal journey...   There is the tribe of women who are "childfree" (don't have children; never wanted to have children). There is another tribe of women who are "childless" (went through their infertility journey and ended up without any successful results). I am stuck in the middle... when I was in my late teens/early twenties, I decided that I didn't want to have children; then when I got married, we decided that life wouldn't be so bad with a kid or two but then we found out that I have advanced & extremely severe endometriosis. So then I reverted back to my original decision of not wanting children after all. I'm sort of childfree but I'm also kind of childless. There isn't really a tribe for me. So I continue to forge my own path.

Infertility Awareness Week

It's Infertility Awareness Week again! Resolve has a great Infertilty Awareness Week line up. Although I would love to participate in the conferences, support groups and 5k walks, none of those events are happening in Oklahoma. (sad face) But, I have read all the articles and watched the videos. To do my part in spreading advocacy, I will once again write about my infertility journey.

The theme for this year's awareness week is to start the discussion. Infertility remains such a taboo topic. There are tons of women out there who feel embarrassed and ashamed when they're asked when they'll finally start a family and have kids. But why? Infertility affects at least one in eight women of childbearing age. It's a normal thing.
       I, for one, am not ashamed. If you're unlucky enough to ask me when I plan on having kids, I won't dance around the topic. I will tell you that I have severe endometriosis and it has damaged my reproductive organs so I am now infertile. You will either 1. feel horribly uncomfortable and walk away or 2. continue talking to me ...
      We can talk about how you read in a magazine that Chrissy Teigen had an IVF.
      We can talk about your friend or cousin or coworker who also struggled with getting pregnant.
      I can explain what endometriosis is and you can say that you read Lena Dunham's tweets.
      You can empathize.
      You can learn.
      You can realize that infertility is a real thing and now you know someone who has this issue with their health.
      It's no longer a foreign & strange disease.  

I want this on a t-shirt but I can't find it online or on Etsy. Anyone know a screen printer who can put this on a shirt for me?

Besides just blogging about infertility and endometriosis, I want to actually do something for Infertility Awareness Week this year.
       I have a craft show this weekend. I will be at The Handmade Show at The Crown Center on Saturday April 30th. I need to sell ten pillows per show in order to make back my costs and labor. Any more pillows that I sell, it's just profit. At my show this weekend, I will double any profit and donate an equal amount to Resolve and The Endometriosis Foundation. So, hypothetically, if I sell fifteen pillows, I get $50 profit... I will donate $50 to Resolve and $50 to The Endometriosis Foundation. Please, please, please come out to The Crown Center to support not only RagsReborn but also help me donate some money to a good cause.

Did you know that March was Endometriosis Awareness Month? Nah, probably not. Don't feel bad because I didn't either, and I have the damn disease! Padma Lakshmi, created the Endometriosis Foundation of America (http://www.endofound.org/).

I have suffered with endometriosis since my first period back in high school. Everyone who is diagnosed experiences it differently, but for me, endometriosis causes debilitating pain during my menstrual cycle. My flow is also extremely heavy and longer than the 3-5 days average. Gross, I know. Here's a pretty good article about the disease: http://www.refinery29.com/endometriosis-symptoms-surgery-period-pain. Luckily for me, both my primary care physician and OB-GYN recognized the symptoms and I wasn't treated like the poor woman who authored the article.

So, "what is this odd disease?" you ask. Tissue that is supposed to grow within the uterus grows outside of it and pretty much anywhere else it feels like growing. I have growth all along my Fallopian tubes (which are completely damaged and that is the primary reason why I cannot get pregnant) and my left ovary is literally covered in the stuff. I've had surgery to remove some of the tissue but there is no cure. It will continue to grow and grow. The only thing I can do is to just manage the pain. Don't tell anyone but I am probably addicted to Motrin and Naproxen.

It's taken me thirty years, but I've finally "found myself." If I had to make a family crest, here it is:

I am a PROUD rescue pet parent.

I have endometriosis and am UNASHAMED.

I am a HARDWORKING small business owner.

My three passions in life are pet rescue & adoption, infertility & endometriosis awareness and acceptance and RagsReborn Gifts.

Thanks so much for reading this blog. Thank you for listening to me rant about a health issue that is often overlooked. And, please, please, please come out to The Crown Center to support not only RagsReborn but also help me donate some money to a good cause.

Erica is a little late posting this but... National Infertility Awareness Week was April 19-25

I have three loves: 

        RagsReborn, infertility awareness & acceptance and pet rescue/adoption. I'm sure by now you're sick and tired of RagsReborn and craft show stuff.  I've already talked about my dogs quite a bit so now its time for infertility awareness.

Watch out because shit is about to get heavy.  No fun little crafts or recipes this week. I'm actually going to do my first personal blog post.

National Infertility Awareness week was about a month ago. I have great reverence and respect for women and couples who have to suffer with infertility. I think its pretty rude that one of the most common questions to ask a couple is if they have kids and if not, when they plan to have kids. Infertility is real. (#thestruggleisreal) Society has made it the norm to have gaggles of children and for women who cannot, there is a huge sense of shame and embarrassment. How many people do you know talk openly about infertility? Zero, I bet. I read some statistic that women who have infertility issues get just as depressed as patients who have been diagnosed with cancer. And the suicide rates for infertiles is pretty wild.

Luckily, there is help. The rates of infertility are so high, that organizations and support groups have sprung up. There is an organization named Resolve that does a pretty great job setting up events, online discussions and PodCasts for National Infertility Awareness Week. The whole shebang. None of the events are in Oklahoma, though. : (  I read a bunch of the articles and discussion forums. I meant to post this blog as my contribution but that was the same week that my laptop died and then Indie Trunk Show completely took over my life. There is a 5k in Texas that I plan to participate in next year. I'll probably do some other stuff, too.

I am part of the one in six or one in eight or one in ten (depending on what statistics you prefer to believe) women who cannot get pregnant naturally. Yup, Erica suffers from infertility. It is actually more of a medical health concern rather than a reproductive concern in my case. My uterus is tilted unbelievably backwards (and it could be folded in half, the jury's still out on that) and I have several cysts on my ovaries. They're mostly on my left one. I am monitored by my ob/gyn and I have to take close care of myself. I have to get regular trans-vaginal ultrasounds and its probably one of the worst things in the world. Luckily, none of my cysts are cancerous.

This was never a known problem (aka medical diagnosis) up until about a year ago. Pain in that area of my body has always been an issue but I just assumed it was part of life. I didn't really start my mensies until my late late teens and its sort of been problematic ever since. Sometimes, I'm regular on my menstrual cycle and sometimes, I'm not. Sometimes, I just spot for days on end for no damn reason. Over the years, my periods started getting heavier and more painful. Believe it or not, I have literally blacked out from the pain. (O_o) I have cramps like you would not believe and I have persistent abdominal pain throughout the entire month. But, I thought this was all part of being a woman and I never wanted to have children when I was younger-- I was too ambitious and too adventurous. But for a brief and fleeting moment last year, Wes and I decided that maybe we might. So we did the dance with no pants ... and no precautionary measures. But time and time again, Aunt Flo paid me a visit and reminded me that I failed. It gets pretty upsetting and you end up finding yourself in a very dark place. When that shit happens, you have to "look on the bright side"... so, here goes...if I never tried to get pregnant, then I would have never gone to my ob/gyn to get diagnosed. It was with my infertility diagnosis that I discovered that I have other issues with my reproductive system and now I'm getting answers and hopefully pain relief.

I believe it was extra difficult for me because I'm in a pretty unique position. All other couples I've met and read about go through their infertility journey together. They cry together and they talk together. They understand each other because they're both in the same boat. Well, not me. I suffer alone. Wes has experienced pregnancy and child rearing before. He and his high school sweetheart went through that. I have to live the rest of my life knowing that my husband had something magical with another woman and he cannot have that with me. Ever. Knowing that you're in that position gives you a sense of sadness, anger and jealously that I don't even want to begin to talk about.

So, I started my journey and went through the five stages of grief. I read about and researched infertility; I read medical articles, forums, two actual hard cover books and numerous blogs. Oh boy, did I read blogs (a REALLY good one is Life Without Baby)!! Some were uplifitng & positive and some were written by women just as crazy and depressed as I was. We changed our diets and I went to a handful of infertility support group meetings. I even talked to two separate people I know that went through adoption. I got a lot of insight and understanding into the world of infertility. I completely respect all the couples that go through the treatment but in the end, I decided that a child is not what life has planned for me. I know I will not be giving birth naturally and it will be pretty impossible to accomplish an international adoption.  My only option is fertility treatments and I don't believe in using science to make a child. The odds aren't too great and the infertility clinics prey on your emotions and deep longing to give birth.

Now, here I am. I wouldn't say I'm entirely okay but I have come to acceptance. I had to read "Good to Great" in one of my college business classes. I didn't really like the book but what I remember is a chapter on knowing when to move on and pursue other dreams. You may want to accomplish something with every fiber of your being, but in the end, if you can't do it, you just can't do it. Not everyone is going to get drafted into the NBA or be the next Steve Jobs. It sounds terrible but you have to know when to quit and start something else. Realign your goals and find new passions. My new baby is RagsReborn. It's as much a child as any real child a woman can have. I have to work at it and spend countless hours with it in order for it to grow properly. I certainly brag about it and am proud of all its accomplishments. Wes finished all his child rearing at an astonishingly young age so we have the rest of our lives to travel and be happily married. On days that I get especially moody and suicidal, I remind myself that although he experienced the gift of life with another wonderful woman, he chose ME to marry. We will have many joyous experiences and while nothing we have can measure up to spawning an heir, we still have each other and the rest of our lives to live together.

For all those who are reading this and find yourself in a similar situation as I am in, I leave you with two things:

One is an amazingly written book. "Waiting for Daisy" details the journey that Peggy Orenstein and her husband went through. It brought me to both tears of sadness and fits of giggles. I read it in two days and would say it's one of my favorite books. I really want to own it. (*hint, hint for those of you who want to buy me stuff*)

The second thing is this silly little article. http://www.babble.com/pregnancy/10-people-you-hate-when-youre-trying-to-get-pregnant/  I'm not bitter or angry at women with children. I actually have two close friends who are pregnant right now. But sometimes you just gotta laugh at the hell that life has dealt you. After that, you can get through it in your own way and start charting a new life for yourself; universe be damned!